Reform Autism CARES

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Executive Summary

2018 IACC Stakeholder Satisfaction Survey (pdf)

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Why Reform the Bill

On September 30, 2019 the Autism Collaboration Accountability Research, Education, and Services (CARES) Act of 2014 will either have been reauthorized by Congress or sunset. Unfortunately, the bill has resulted in a lack of accountability, effectiveness, and inclusion. There have been no causes of the development of autism identified, and no new treatments or interventions advanced as a result of the activities funded.

Since the Federal government began its response with the Children’s Health Act of 2000, autism prevalence has climbed from one in 150 American children, to one in 59. More children have been diagnosed since 2000 than the number of living in Washington, DC., or Austin, or Baltimore. There is no effort to count the number of adults with autism, which makes service provision for this population difficult.

The Federal government’s response has failed the autism community. As waiting lists for services grow, there are no treatments available to address commonly co-occurring medical conditions. Research shows that:

We are looking for new and better ways to solve the issues we now recognize as the autism crisis, which include reduced lifespan, poorer health, lack of community-based services, lack of appropriate educational programming, lack of family supports, lack of community inclusion, lack of housing availability, lack of employment opportunities, and lack of financial program support. Much of this has been created by the Federal government’s failed response. This is our call to action, and we hope you will join us.

What We’re Asking For

Who is the Reform Autism CARES Coalition

The Reform Autism CARES Coalition is a group of individuals and experienced autism organizations advocating for system change and shifts in policy that will result in measurable improvements in the safety, health, and independence of people with autism and their caregivers. We are people with autism, parents, service providers, physicians, teachers, former White House staffers, researchers, marketing executives, social media consultants, insurance leaders, and taxpayers.

Organizations include:

We welcome new members of the Coalition, and our grassroots campaign is growing! Join us to improve lives and use taxpayer dollars effectively today.

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