New Research Highlights Barriers, Calls for Inclusive Research and Systemic Reform to Support Diverse Needs
A study examining the transition to adulthood for young people on the autism spectrum identified significant challenges, including delays in diagnosis, lengthy wait lists, and limited access to essential services. These barriers place a heavy burden on parents, who often take on a central role in coordinating care, navigating complex systems, and providing direct support. The study included nine focus groups with young adults, parents, and professionals, focusing on diverse identities such as racial and ethnic minorities, LGBTQIA+ individuals, and nonspeaking participants. Participants highlighted the need for research that reflects the experiences of marginalized groups, evaluates the effectiveness of services like peer mentoring and employment programs, and examines disparities in service availability based on location. They also stressed the importance of including individuals on the spectrum in shaping research priorities to address cultural and systemic differences. The findings call for systemic reforms to improve service delivery, better address intersecting identities, and enhance outcomes for the growing number of young people on the spectrum transitioning into adulthood.
